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Browsing by Author "Mullol, J"

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  • EPOS2020: development strategy and goals for the latest European Position Paper on Rhinosinusitis
    Publication . Fokkens, W; Desrosiers, M; Harvey, R; Hopkins, C; Mullol, J; Philpott, C; Alobid, I; Lima, W T Anselmo; Bachert, Claus; Baroody, F; Bernal-Sprekelsen, M; von Buchwald, C; Cervin, A; Cohen, Noam; Constantinidis, J.; De Gabory, L.; Douglas, R; Gevaert, P; Hafner, A; Hellings, Peter; Joos, G; Kalogjera, L; Kern, R; Knill, A; Kocks, J; Landis, Basile; Limpens, J.; Lebeer, S.; Lourenço, Olga; Matricardi, P M; Meco, C; O Mahony, L.; Reitsma, S; Ryan, D; Schlosser, R; Senior, B; Smith, T; Teeling, T.; Tomazic, Peter Valentin; Toppila-Salmi, S; Wang, D Y; Wang, D; Zhang, L; Lund, V
    Background: The European Position Papers on Rhinosinusitis from 2005, 2007 and 2012 have had a measurable impact on the way this common condition with high impact on quality of life is managed around the world. EPOS2020 will be the latest iteration of the guideline, addressing new stakeholders and target users, presenting a summary of the latest literature and evolving treatment modalities, and formulating clear recommendations based on all available evidence. Methodology: Based on the AGREE II framework, this article demonstrates how the EPOS2020 steering group will address six key areas to ensure consistency in quality and presentation of information in the latest rhinosinusitis clinical practice guideline: scope and purpose; stakeholder involvement; rigour of development; clarity of presentation; recommendations and applicability; editorial independence. Results: By analysing the guidance from AGREE II, we formulated a detailed development strategy for EPOS2020. We identify new stakeholders and target users and ratify the importance of patient involvement in the latest EPOS guideline. New and expanded areas of research to be addressed are highlighted. We confirm our intention to use mixed methodologies, combining evidencebased medicine with real life studies; when no evidence can be found, use Delphi rounds to achieve clear, inclusive recommendations. We also introduce new concepts for dissemination of the guideline, using Internet and social media to improve accessibility. Conclusion: This article is an introduction to the EPOS2020 project, and presents the key goals, core stakeholders, planned methodology and dissemination strategies for the latest version of this influential guideline.
    2019-06-01Journal article Restricted access Show more
  • Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma
    Publication . Bousquet, Jean; Bedbrook, Anna; Czarlewski, W; Onorato, G L; Arnavielhe, S; Laune, Daniel; Mathieu-Dupas, Eve; Fonseca, J; Costa, E; Lourenço, Olga; Almeida, M Morais; Pham-Thi, N; Portejoie, F; Picard, Robert; Roche, N; Rolland, C; Schmidt-Grendelmeier, P; Kuna, P; Samolinski, Boleslaw; Anto, Josep M.; Cardona, V; Mullol, J; Pinnock, H; Ryan, D; Sheikh, A; Walker, S; Williams, S; Becker, S; Klimek, L; Pfaar, Oliver; Bergmann, Karl-Christian; Mösges, R; Zuberbier, T; Roller-Wirnsberger, R E; Tomazic, Peter Valentin; Haahtela, Tari; Salimäki, Johanna; Toppila-Salmi, S; Valovirta, Erkka; Vasankari, Tuula; Gemicioğlu, Bilun; Yorgancioglu, A; Papadopoulos, N; Prokopakis, E P; Tsiligianni, I G; Bosnic-Anticevich, S; O'Hehir, Robyn; Ivancevich, J C; Neffen, Hugo; Zernotti, M E; Kull, Inger; Melén, Erik; Wickman, M; Bachert, Claus; Hellings, Peter; Brusselle, G; Palkonen, S; Bindslev-Jensen, C; Eller, E; Waserman, S; Boulet, L P; Bouchard, J; Chu, D K; Schünemann, H J; Sova, M; De Vries, G; Van Eerd, Michiel; Agache, Ioana; Ansotegui, I J; Bewick, M; Casale, Thomas; Dykewick, M; Ebisawa, M; Murray, R; Naclerio, Robert; Okamoto, Yoshitaka; Wallace, D V; Todo-Bom, Ana; Illario, Maddalena; Menditto, E; Canonica, G W; Cecchi, Lorenzo; Monti, R; Napoli, Luigi; Ventura, Maria Teresa; De Feo, G; Fokkens, W J; Chavannes, N H; Reitsma, S; Cruz, A A; Silva, J da; Serpa, F S; Larenas Linnemann, Désirée; Fuentes Perez, J M; Huerta-Villalobos, Y R; Rivero-Yeverino, D; Rodriguez-Zagal, E; Valiulis, Arunas; Dubakiene, R; Emuzyte, R; Kvedarienė, Violeta; Annesi-Maesano, I; Blain, H; Bonniaud, P; Bosse, I; Dauvilliers, Y; Devillier, P; Fontaine, J F; Pépin, J L
    Aims: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases. Methods: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients. Stakeholders: Include patients, health care professionals (pharmacists and physicians), authorities, patient’s associations, private and public sectors. Results: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered.
    2019Journal article Open access Show more
  • MASK 2017: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma multimorbidity using real-world-evidence
    Publication . Bousquet, Jean; Arnavielhe, S; Bedbrook, Anna; Bewick, M; Laune, Daniel; Mathieu-Dupas, Eve; Murray, R; Onorato, G L; Pépin, J L; Picard, Robert; Portejoie, F; Costa, E; Fonseca, J; Lourenço, Olga; Almeida, M Morais; Todo-Bom, Ana; Cruz, A A; Silva, J da; Serpa, F S; Illario, Maddalena; Menditto, E; Cecchi, Lorenzo; Monti, R; Napoli, Luigi; Ventura, Maria Teresa; De Feo, G; Linnemann, Désirée Larenas; Fuentes Perez, M; Huerta Villabolos, Y R; Rivero-Yeverino, D; Rodriguez-Zagal, E; Amat, F; Annesi-Maesano, I; Bosse, I; Demoly, P; Devillier, P; Fontaine, J F; Just, Jocelyne; Kuna, T P; Samolinski, Boleslaw; Valiulis, Arunas; Emuzyte, R; Kvedarienė, Violeta; Ryan, D; Sheikh, A; Schmidt-Grendelmeier, P; Klimek, L; Pfaar, Oliver; Bergmann, Karl-Christian; Mösges, R; Zuberbier, T; Roller-Wirnsberger, R E; Tomazic, Peter Valentin; Fokkens, W J; Chavannes, N H; Reitsma, S; Anto, Josep M.; Cardona, V; Dedeu, T; Mullol, J; Haahtela, Tari; Salimäki, Johanna; Toppila-Salmi, S; Valovirta, Erkka; Gemicioglu, Bilun; Yorgancioglu, A; Papadopoulos, N; Prokopakis, E P; Bosnic-Anticevich, S; O'Hehir, Robyn; Ivancevich, J C; Neffen, Hugo; Zernotti, E; Kull, Inger; Melén, Erik; Wickman, M; Bachert, Claus; Hellings, Peter; Palkonen, S; Bindslev-Jensen, C; Eller, E; Waserman, S; Sova, M; De Vries, G; Van Eerd, Michiel; Agache, Ioana; Casale, Thomas; Dykewickz, M; Naclerio, Robert; Okamoto, Yoshitaka; Wallace, D V
    mHealth, such as apps running on consumer smart devices is becoming increasingly popular and has the potential to profoundly affect healthcare and health outcomes. However, it may be disruptive and results achieved are not always reaching the goals. Allergic Rhinitis and its Impact on Asthma (ARIA) has evolved from a guideline using the best evidence-based approach to care pathways suited to real-life using mobile technology in allergic rhinitis (AR) and asthma multimorbidity. Patients largely use over-the-counter medications dispensed in pharmacies. Shared decision making centered around the patient and based on self-management should be the norm. Mobile Airways Sentinel networK (MASK), the Phase 3 ARIA initiative, is based on the freely available MASK app (the Allergy Diary, Android and iOS platforms). MASK is available in 16 languages and deployed in 23 countries. The present paper provides an overview of the methods used in MASK and the key results obtained to date. These include a novel phenotypic characterization of the patients, confirmation of the impact of allergic rhinitis on work productivity and treatment patterns in real life. Most patients appear to self-medicate, are often non-adherent and do not follow guidelines. Moreover, the Allergy Diary is able to distinguish between AR medications. The potential usefulness of MASK will be further explored by POLLAR (Impact of Air Pollution on Asthma and Rhinitis), a new Horizon 2020 project using the Allergy Diary.
    2018Journal article Open access Show more