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Publication
Influência do acompanhamento de Cuidados Paliativos na autoperceção da Dignidade e na Qualidade de Vida, em doentes em fim de vida
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Authors
Abstract(s)
Introdução: Pacientes oncológicos com necessidades paliativas experimentam grande
sofrimento psicológico e sintomático que pode levar a uma grande sensação de desalento e
ao comprometimento do sentido de dignidade. Manter a dignidade do paciente ou a
qualidade de ser valorizado é um objetivo central dos cuidados paliativos. A noção de
dignidade é muitas vezes explicada pela funcionalidade, alívio dos sintomas e autonomia na
tomada de decisões. Contudo, este entendimento e as suas implicações ainda não são
totalmente claras.
Objetivo: Estudar a influência do seguimento por Cuidados Paliativos na autoperceção de
dignidade e na qualidade de vida do doente oncológico.
Materiais e Métodos: Estudo qualitativo através de entrevistas semi-estruturadas com
aplicação das escalas WHOQOL-BREF e Escala de Dignidade em 44 doentes oncológicos
de um hospital da zona Centro. Estes doentes foram divididos entre um grupo acompanhado
pela equipa de Cuidados Paliativos e outro sem acompanhamento. Fez-se análise estatística
com recurso ao software SPSS versão 29.
Resultados: Verificou-se, com o presente estudo que, em todos os domínios, a qualidade de
vida dos doentes foi significativamente inferior aos valores normativos, sem diferenças
substanciais entre os grupos com ou sem acompanhamento por Cuidados Paliativos. A
dignidade também se revelou comprometida, com ênfase no sofrimento existencial e na
dependência. Estes achados sugerem que, embora os cuidados paliativos promovam
conforto, os seus benefícios não se refletem em melhorias quantitativas substanciais nas
escalas utilizadas.
Conclusão: A ausência de diferenças significativas entre os grupos sugere que os cuidados
paliativos, embora essenciais, podem não melhorar quantitativamente todos os aspetos
avaliados. Destaca-se a necessidade de uma abordagem mais holística e personalizada nos
cuidados prestados, que inclua suporte emocional e espiritual, visando preservar a dignidade
e melhorar a qualidade de vida dos doentes em fim de vida.
Introduction: Oncologic patients with palliative needs experience great psychological and symptomatic suffering that can lead to a enourmous feeling of discouragement and compromised sense of dignity. Maintaining the patient's dignity or feeling valued is a central goal of palliative care. The notion of dignity is often explained by functionality, symptom relief and autonomy in decision-making. However, this understanding and its implications are still not entirely clear. Objective: To study the influence of Palliative Care follow-up on the self-perception of dignity and quality of life of cancer patients. Materials and Methods: Qualitative study using semi-structured interviews with the application of the WHOQOL-BREF and The Patient Dignity Inventory to 44 oncologic patients at an hospital located in the Centro region. These patients were divided into a group monitored by the Palliative Care team and another without follow-up. Statistical analysis was performed using SPSS software version 29. Results: The present study found that, in all domains, the patients' quality of life was significantly lower than the normative values, with no substantial differences between the groups with or without Palliative Care. Dignity was also compromised, with an emphasis on existential suffering and dependence. These findings suggest that, although palliative care promotes comfort, its benefits are not reflected in substantial quantitative improvements in the scales used. Conclusion: The absence of significant differences between the groups suggests that palliative care, although essential, may not quantitatively improve all aspects evaluated. The need for a more holistic and personalized approach of care provided stands out, which includes emotional and spiritual support, aiming to preserve the dignity and improve the quality of life of patients at the end of their lives.
Introduction: Oncologic patients with palliative needs experience great psychological and symptomatic suffering that can lead to a enourmous feeling of discouragement and compromised sense of dignity. Maintaining the patient's dignity or feeling valued is a central goal of palliative care. The notion of dignity is often explained by functionality, symptom relief and autonomy in decision-making. However, this understanding and its implications are still not entirely clear. Objective: To study the influence of Palliative Care follow-up on the self-perception of dignity and quality of life of cancer patients. Materials and Methods: Qualitative study using semi-structured interviews with the application of the WHOQOL-BREF and The Patient Dignity Inventory to 44 oncologic patients at an hospital located in the Centro region. These patients were divided into a group monitored by the Palliative Care team and another without follow-up. Statistical analysis was performed using SPSS software version 29. Results: The present study found that, in all domains, the patients' quality of life was significantly lower than the normative values, with no substantial differences between the groups with or without Palliative Care. Dignity was also compromised, with an emphasis on existential suffering and dependence. These findings suggest that, although palliative care promotes comfort, its benefits are not reflected in substantial quantitative improvements in the scales used. Conclusion: The absence of significant differences between the groups suggests that palliative care, although essential, may not quantitatively improve all aspects evaluated. The need for a more holistic and personalized approach of care provided stands out, which includes emotional and spiritual support, aiming to preserve the dignity and improve the quality of life of patients at the end of their lives.
Description
Keywords
Cuidados Paliativos Dignidade Doentes Oncológicos Fim de Vida Qualidade de Vida