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Necessidades Informacionais Sobre Comprometimento Cognitivo Relacionado com o Cancro e os seus Tratamentos: A Perspetiva dos Sobreviventes Oncológicos
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Introdução: O comprometimento Cognitivo Relacionado com o Cancro (CRCI) refere-se às alterações nas funções cognitivas que tendem a afetar a maior parte dos sobreviventes oncológicos, apesar da maioria não receber informação sobre o seu desenvolvimento, duração e impacto. Verifica-se, também, uma lacuna na investigação sobre as necessidades informacionais dos sobreviventes oncológicos relativamente ao CRCI. Assim, o presente estudo teve como objetivos: A) avaliar o nível de conhecimento dos sobreviventes oncológicos acerca do CRCI; B) avaliar se os sobreviventes consideram dispor de informação suficiente sobre o tema e as lacunas informacionais percebidas; C) analisar a pertinência de desenvolver um recurso informativo sobre CRCI e identificar os conteúdos que os sobreviventes consideram relevantes. Método: A amostra foi constituída por sobreviventes oncológicos do sexo feminino (n=13), com idades compreendidas entre os 43 e os 67 anos (X=52.54, DP=8.32). Todas foram diagnosticadas com cancro da mama entre os anos de 2009 e 2024 e foram submetidas a diversos tratamentos oncológicos. A análise qualitativa guiada pelas diretrizes COREQ seguiu uma abordagem temática dedutivo-indutiva de acordo com os passos propostos por Braun e Clarke (2006). Da análise emergiram cinco temas principais: A) experiência de mudanças cognitivas; B) impacto percebido do CRCI; C) estratégias de coping e de suporte; D) perceção e conhecimento sobre CRCI; E) expectativas sobre um guia informativo. Resultados: Os resultados foram ao encontro dos dados disponíveis na literatura. A maioria das participantes (n=11) manifestou sintomatologia cognitiva com um impacto relevante em vários domínios. As estratégias de coping mais utilizadas foram estratégias compensatórias que foram desenvolvidas, sobretudo, sem o apoio dos profissionais de saúde. Concluiu-se também que existe um défice comunicacional entre a equipa de saúde e os sobreviventes oncológicos e um desconhecimento generalizado dos segundos sobre o CRCI. A maioria das participantes considerou que seria fulcral um conhecimento prévio sobre o tema fornecido pela equipa de saúde e a existência de um guia informativo também se afigurou relevante na sua perspetiva. Discussão: Os resultados destacam uma lacuna importante na informação disponível sobre CRCI nos sobreviventes oncológicos. Nesse sentido, reforça-se a necessidade de desenvolver mais estudos sobre a temática e de desenvolver um guia informativo que contribua para colmatar as necessidades informacionais destes sobreviventes.
Introduction: Cancer-Related Cognitive Impairment (CRCI) refers to changes in cognitive functions that tend to affect most cancer survivors, although the majority do not receive information regarding its development, duration, and impact. There is also a gap in research concerning the informational needs of cancer survivors in relation to CRCI. Thus, the present study aimed to: A) assess the level of knowledge that cancer survivors have about CRCI; B) evaluate whether survivors consider themselves to have sufficient information on the subject and the informational gaps they perceive; C) analyze the relevance of developing an informational resource on CRCI and identify the contents that survivors consider important. Method: The sample consisted of female cancer survivors (n=13), aged between 43 and 67 years (X=52.54, SD=8.32). All were diagnosed with breast cancer between 2009 and 2024 and underwent various oncological treatments. The qualitative analysis, guided by the COREQ guidelines, followed a deductive–inductive thematic approach according to the steps proposed by Braun and Clarke (2006). Five main themes emerged from the analysis: A) experience of cognitive changes; B) perceived impact of CRCI; C) coping and support strategies; D) perception and knowledge about CRCI; E) expectations regarding an informational guide. Results: The findings were consistent with the data available in the literature. Most participants (n=11) reported cognitive symptoms with a significant impact in several domains. The most frequently used coping strategies were compensatory ones, mostly developed without the support of healthcare professionals. It was also found that there is a communication gap between healthcare teams and cancer survivors, along with a widespread lack of knowledge among the latter about CRCI. Most participants considered that prior knowledge on the subject, provided by healthcare teams, would be essential, and that an informational guide would also be highly relevant from their perspective. Discussion: The results highlight an important gap in the information available on CRCI among cancer survivors. In this sense, the need to conduct further studies on the topic and to develop an informational guide to address the informational needs of these survivors is reinforced.
Introduction: Cancer-Related Cognitive Impairment (CRCI) refers to changes in cognitive functions that tend to affect most cancer survivors, although the majority do not receive information regarding its development, duration, and impact. There is also a gap in research concerning the informational needs of cancer survivors in relation to CRCI. Thus, the present study aimed to: A) assess the level of knowledge that cancer survivors have about CRCI; B) evaluate whether survivors consider themselves to have sufficient information on the subject and the informational gaps they perceive; C) analyze the relevance of developing an informational resource on CRCI and identify the contents that survivors consider important. Method: The sample consisted of female cancer survivors (n=13), aged between 43 and 67 years (X=52.54, SD=8.32). All were diagnosed with breast cancer between 2009 and 2024 and underwent various oncological treatments. The qualitative analysis, guided by the COREQ guidelines, followed a deductive–inductive thematic approach according to the steps proposed by Braun and Clarke (2006). Five main themes emerged from the analysis: A) experience of cognitive changes; B) perceived impact of CRCI; C) coping and support strategies; D) perception and knowledge about CRCI; E) expectations regarding an informational guide. Results: The findings were consistent with the data available in the literature. Most participants (n=11) reported cognitive symptoms with a significant impact in several domains. The most frequently used coping strategies were compensatory ones, mostly developed without the support of healthcare professionals. It was also found that there is a communication gap between healthcare teams and cancer survivors, along with a widespread lack of knowledge among the latter about CRCI. Most participants considered that prior knowledge on the subject, provided by healthcare teams, would be essential, and that an informational guide would also be highly relevant from their perspective. Discussion: The results highlight an important gap in the information available on CRCI among cancer survivors. In this sense, the need to conduct further studies on the topic and to develop an informational guide to address the informational needs of these survivors is reinforced.
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Palavras-chave
Comprometimento Cognitivo Associado ao Cancro Necessidades Informacionais Recurso
Informativo