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- Patient‐centered digital biomarkers for allergic respiratory diseases and asthma: The ARIA‐EAACI approach – ARIA‐EAACI Task Force ReportPublication . Bousquet, Jean; Shamji, Mohamed; Anto, Josep M.; Schünemann, Holger; Canonica, Giorgio Walter; Jutel, Marek; Del Giacco, Stafano; Zuberbier, Torsten; Pfaar, Oliver; Fonseca, Joao A; Pinto, Bernardo Sousa; Pétré, Benoit; Pham‐Thi, Nhân; Puggioni, Francesca; Quirce, Santiago; Roche, Nicolas; Rouadi, Philip; Sousa, Ana Sá; Sagara, Hironori; Sastre, Joaquin; Scichilone, Nicola; Sheikh, Aziz; Sova, Milan; Ulrik, Charlotte Suppli; Taborda Barata, Luis; Todo-Bom, Ana; Torres, María Jose; Tsiligianni, Ioanna; Usmani, Omar; Valovirta, Erkka; Vasankari, Tuula; Vieira, Rafael José; Wallace, Dana; Waserman, Susan; Zidarn, Mihaela; Yorgancıoglu, Arzu; Zhang, Luo; Chivato, Tomás; Ollert, Markus; Klimek, Ludger; Czarlewski, Wienczyslawa; Bedbrook, Anna; Amaral, Rita; Ansotegui Zubeldia, Ignacio Javier; Bosnic-Anticevich, Sinthia; Braido, Fulvio; Loureiro, Cláudia Chaves; Gemicioglu, Bilun; Haahtela, Tari; Kulus, Marek; Kuna, Piotr; Kupczyk, Maciej; Matricardi, Paolo Maria; Regateiro, Frederico S.; Samoliński, Bolesław; Sofiev, Mikhail; Toppila-Salmi, Sanna; Valiulis, Arunas; Ventura, Maria Teresa; Bárbara, Cristina; Bergmann, Karl-Christian; Bewick, Michael; Blain, Hubert; Bonini, Matteo; Boulet, Louis-Philippe; Bourret, Rodolphe; Brusselle, Guy; Brussino, Luisa; Buhl, Roland; Cardona, Victoria; Casale, Thomas; Cecchi, Lorenzo; Charpin, Denis; Cherrez Ojeda, Ivan; Chu, Derek K; Cing, Cemal; Costa, Elísio; Cruz, Álvaro A.; Devillier, Philippe; Dramburg, Stephanie; Fokkens, Wytske; Gotua, Maia; Heffler, Enrico; Ispayeva, Zhanat; Ivancevich, Juan Carlos; Joos, Guy; Kaidashev, Igor; Kraxner, Helga; Kvedarienė, Violeta; Larenas Linnemann, Désirée; Laune, Daniel; Lourenço, Olga; Louis, Renaud; Mäkelä, Mika J.; Makris, Michael; Maurer, Marcus; Melén, Erik; Micheli, Yann; Almeida, Mário Morais; Mullol, Joaquim; Niedoszytko, Marek; O'Hehir, Robyn; Okamoto, Yoshitaka; Olze, Heidi; Papadopoulos, Nikolaos G.; Papi, Alberto; Patella, VincenzoBiomarkers for the diagnosis, treatment and follow-up of patients with rhinitis and/ or asthma are urgently needed. Although some biologic biomarkers exist in specialist care for asthma, they cannot be largely used in primary care. There are no validated biomarkers in rhinitis or allergen immunotherapy (AIT) that can be used in clinical practice. The digital transformation of health and health care (including mHealth) places the patient at the center of the health system and is likely to optimize the practice of allergy. Allergic Rhinitis and its Impact on Asthma (ARIA) and EAACI (European Academy of Allergy and Clinical Immunology) developed a Task Force aimed at proposing patient-reported outcome measures (PROMs) as digital biomarkers that can be easily used for different purposes in rhinitis and asthma. It first defined control digital biomarkers that should make a bridge between clinical practice, randomized controlled trials, observational real-life studies and allergen challenges. Using the MASK-air app as a model, a daily electronic combined symptom-medication score for allergic diseases (CSMS) or for asthma (e-DASTHMA), combined with a monthly control questionnaire, was embedded in a strategy similar to the diabetes approach for disease control. To mimic real-life, it secondly proposed quality-of- life digital biomarkers including daily EQ-5D visual analogue scales and the bi-weekly RhinAsthma Patient Perspective (RAAP). The potential implications for the management of allergic respiratory diseases were proposed.
- Next-generation care pathways for allergic rhinitis and asthma multimorbidity: a model for multimorbid non-communicable diseases-Meeting Report (Part 2)Publication . Bousquet, Jean; Pham-Thi, Nhân; Bedbrook, Anna; Agache, Ioana; Annesi-Maesano, Isabella; Ansotegui, Ignacio; Anto, Josep M.; Bachert, Claus; Benveniste, Samuel; Bewick, Mike; Billo, Nils; Bosnic-Anticevich, Sinthia; Bosse, Isabelle; Brusselle, Guy; Calderon, Moïses A; Canonica, G Walter; Caraballo, Luis; Cardona, Victoria; Carriazo, Ana Maria; Cash, Eugene; Cecchi, Lorenzo; Chu, Derek K; Colgan, Elaine; Costa, Elísio; Cruz, Alvaro A; Czarlewski, Wienczyslawa; Durham, Stephen; Ebisawa, Motohiro; Erhola, Marina; Fauquert, Jean-Luc; Fokkens, Wytske J; Fonseca, Joao A; Guldemond, Nick; Iinuma, Tomohisa; Illario, Maddalena; Klimek, Ludger; Kuna, Piotr; Kvedarienė, Violeta; Linnemann, Désirée Larenas; Laune, Daniel; Le Thi Tuyet, Lan; Lourenço, Olga; Malva, Joao O; Marien, Gert; Menditto, Enrica; Mullol, Joaquim; Münter, Lars; Okamoto, Yoshitaka; Onorato, Gabrielle L; Papadopoulos, Nikos G; Perala, Maritta; Pfaar, Oliver; Phillips, Abigail; Phillips, Jim; Pinnock, Hilary; Portejoie, Fabienne; Quinones-Delgado, Pablo; Rolland, Christine; Rodts, Ulysse; Samolinski, Boleslaw; Sanchez-Borges, Mario; Schünemann, Holger J; Shamji, Mohamed; Somekh, David; Togias, Alkis; Toppila-Salmi, Sanna; Tsiligianni, Ioanna; Usmani, Omar; Walker, Samantha; Wallace, Dana; Valiulis, Arunas; van der Kleij, Rianne; Ventura, Maria Teresa; Williams, Sian; Yorgancioglu, Arzu; Zuberbier, TorstenIn all societies, the burden and cost of allergic and chronic respiratory diseases are increasing rapidly. Most economies are struggling to deliver modern health care effectively. There is a need to support the transformation of the health care system into integrated care with organizational health literacy. MASK (Mobile Airways Sentinel NetworK) (1), a new development of the ARIA (Allergic Rhinitis and its Impact on Asthma) initiative (2), and POLLAR (Impact of Air POLLution on Asthma and Rhinitis, EIT Health) (3), in collaboration with professional and patient organizations in the field of allergy and airway diseases, are proposing real-life ICPs—centred around the patient with rhinitis and using mHealth monitoring of environmental exposure. An expert meeting took place at the Pasteur Institute in Paris, December 3, 2018. The aim was to discuss nextgeneration care pathways following an ongoing political agenda (4,5): (I) patient participation, health literacy and self-care through technology-assisted “patient activation”; (II) implementation of care pathways by pharmacists and (III) Next-generation guidelines assessing the recommendations of GRADE guidelines in rhinitis and asthma using real-world evidence (RWE) assessed by mobile technology. The present document reviews the workshop report and follows on from Part 1.
- Next-generation care pathways for allergic rhinitis and asthma multimorbidity: a model for multimorbid non-communicable diseases-Meeting Report (Part 1)Publication . Bousquet, Jean; Pham-Thi, Nhân; Bedbrook, Anna; Agache, Ioana; Annesi-Maesano, Isabella; Ansotegui, Ignacio; Anto, Josep M; Bachert, Claus; Benveniste, Samuel; Bewick, Mike; Billo, Nils; Bosnic-Anticevich, Sinthia; Bosse, Isabelle; Brusselle, Guy; Calderon, Moïses A; Canonica, Giorgio W; Caraballo, Luis; Cardona, Victoria; Carriazo, Ana Maria; Cash, Eugene; Cecchi, Lorenzo; Chu, Derek K; Colgan, Elaine; Costa, Elísio; Cruz, Alvaro A; Czarlewski, Wienczyslawa; Durham, Stephen; Ebisawa, Motohiro; Erhola, Marina; Fauquert, Jean-Luc; Fokkens, Wytske J; Fonseca, Joao A; Guldemond, Nick; Iinuma, Tomohisa; Illario, Maddalena; Klimek, Ludger; Kuna, Piotr; Kvedarienė, Violeta; Linnemann, Désirée Larenas; Laune, Daniel; Le Thi Tuyet, Lan; Lourenço, Olga; Malva, Joao O; Marien, Gert; Menditto, Enrica; Mullol, Joaquim; Münter, Lars; Okamoto, Yoshitaka; Onorato, Gabrielle L; Papadopoulos, Nikos G; Perala, Maritta; Pfaar, Oliver; Phillips, Abigail; Phillips, Jim; Pinnock, Hilary; Portejoie, Fabienne; Quinones-Delgado, Pablo; Rolland, Christine; Rodts, Ulysse; Samolinski, Boleslaw; Sanchez-Borges, Mario; Schünemann, Holger J; Shamji, Mohamed; Somekh, David; Togias, Alkis; Toppila-Salmi, Sanna; Tsiligianni, Ioanna; Usmani, Omar; Walker, Samantha; Wallace, Dana; Valiulis, Arunas; Van Der Kleij, Rianne; Ventura, Maria Teresa; Williams, Sian; Yorgancioglu, Arzu; Zuberbier, TorstenIn all societies, the burden and cost of allergic and chronic respiratory diseases are increasing rapidly. Most economies are struggling to deliver modern health care effectively. There is a need to support the transformation of the health care system for integrated care with organizational health literacy. MASK (Mobile Airways Sentinel NetworK) (1), a new development of the ARIA (Allergic Rhinitis and its Impact on Asthma) initiative, and POLLAR (Impact of Air POLLution on Asthma and Rhinitis, EIT Health) (2), in collaboration with professional and patient organizations in the field of allergy and airway diseases, are proposing reallife integrated care pathways (ICPs) (3)-centred around the patient with rhinitis and using mHealth monitoring of environmental exposure (4). An expert meeting took place at the Pasteur Institute in Paris, December 3, 2018. The aim was to discuss nextgeneration care pathways: (I) Patient participation, health literacy and self-care through technology-assisted “patient activation”; (II) Implementation of care pathways by pharmacists and (III) Next-generation guidelines assessing the recommendations of GRADE guidelines in rhinitis and asthma using real-world evidence (RWE) assessed by mobile technology. The EU (5) and global political agendas are of great importance in supporting health care transformation. MASK has been recognized by DG Santé as a Good Practice (6) in the field of digitally-enabled, integrated, person-centred care. The one-day meeting objectives were clear (Figure 1). The meeting was followed by a workshop. The present paper reports the background of the two-day meeting. [...]
- ARIA digital anamorphosis: Digital transformation of health and care in airway diseases from research to practicePublication . Bousquet, Jean; Anto, Josep M.; Bachert, Claus; Haahtela, Tari; Zuberbier, Torsten; Czarlewski, Wienczyslawa; Bedbrook, Anna; Bosnic-Anticevich, Sinthia; Canonica, Giorgio Walter; Cardona, Victoria; Costa, Elísio; Farrell, John; Wroczynski, Piotr; Bjermer, Leif; Mair, Alpana; Lieberman, Philip; Odemyr, Mikaëla; Agache, Ioana; Larenas Linnemann, Désirée; Ventura, Maria Teresa; Makris, Michael; Samolinski, Boleslaw; Sofiev, Mikhail; Kvedarienė, Violeta; Carreiro-Martins, Pedro; Rolland, Christine; Usmani, Omar; Popov, Todor A; Williams, Dennis M; Sova, Milan; Manning, Patrick; Sheikh, Aziz; Pépin, Jean-Louis; Wagenmann, Martin; Mahboub, Bassam; Milenkovic, Branislava; Louis, Renaud; Laune, Daniel; Zidarn, Mihaela; Okamoto, Yoshitaka; Bonniaud, Philippe; Sisul, Juan; Ansotegui, Ignacio J; Stelmach, Rafael; Bennoor, Kazi Saifuddin; La Grutta, Stefania; O'Hehir, Robyn; De Manuel Keenoy, Esteban; Kleine-Tebbe, Joerg; Nyembue, Dieudonné; Passalacqua, Giovanni; Mitsias, Dimitirios I; Cecchi, Lorenzo; Novellino, Ettore; Buhl, Roland; Pinnock, Hilary; Klimek, Ludger; Ljungberg, Henrik; Akdis, Cezmi A; Gaga, Mina; Custovic, Adnan; Nordlund, Björn; Camargos, Paulo; Billo, Nils E.; Costa, David J; Briedis, Vitalis; Mogica-Martinez, Maria-Dolores; Panzner, Peter; Bourret, Rodolphe; Pham-Thi, Nhân; Schünemann, Holger J; Yorgancioglu, Arzu; Orlando, Valentina; Braido, Fulvio; Okubo, Kimihiro; To, Teresa; Ohta, Ken; Bindslev-Jensen, Carsten; D Bateman, Eric; Durham, Stephen R; Erhola, Marina; Yiallouros, Panayiotis; Cepeda Sarabia, Alfonso M; Lourenço, Olga; Cvetkosvki, Biljana; Napoli, Luigi; Roche, Nicolas; Salimäki, Johanna; Plavec, Davor; Morais-Almeida, Mario; Roberts, Graham; Scheire, Sophie; Camuzat, Thierry; Kull, Inger; Joos, Guy; Rivero-Yeverino, Daniela; Gomez, R Maximiliano; Somekh, David; Iinuma, Tomohisa; Portejoie, Fabienne; Neffen, Hugo; Cartier, Christine; Khaltaev, Nikolai; Rolland, Christine; Reitsma, Sietze; Dykewicz, Mark; Guldemond, Nick A; De Vries, Govert; Gevaert, Philippe; Rosario, Nelson; Fiocchi, Alessandro; De Feo, Giulia; Sastre, Joaquin; Emuzyte, Regina; Bosse, Isabelle; Zhang, Luo; Carriazo, Ana-Maria; Bewick, Michael; Rottem, Menachem; Fauquert, Jean-Luc; Calderon, Moises A; Roller-Wirnsberger, Regina E; Mullol, Joaquim; Rodriguez-Zagal, Erendira; Devillier, Philippe; Sousa, Jaime Correia de; Ebisawa, Motohiro; Kowalski, Marek L; Bedolla-Barajas, Martin; Huerta Villalobos, Yunuen R; Jung, Ki-Suck; Raciborski, Filip; Vezzani, Giorgio; Schmid-Grendelmeier, Peter; Psarros, Fotis; Carneiro, Antonio Vaz; Wong, Gary; Sooronbaev, Talant; Makela, Mika; Vasankari, Tuula; Zeng, Stéphane; Dokic, Dejan; Regateiro, Frederico S; Guzman, Maria Antonieta; Naclerio, Robert; Micheli, Yann; Vandenplas, Olivier; Malva, João; Illario, Maddalena; Menditto, Enrica; Spertini, François; Wickman, Magnus; Leonardini, Lisa; Heffler, Enrico; Basagaña, Xavier; Gotua, Maia; Wallace, Dana; Ivancevich, Juan-Carlos; Viart, Frédéric; Bonini, Matteo; Khaitov, Musa; Ierodiakonou, Despo; Münter, Lars; Courbis, Anne-Lise; Casale, Thomas; Mathieu-Dupas, Eve; Di Capua, Stefania; Miculinic, Neven; Valenta, Rudolf; Toppila-Salmi, Sanna Katriina; Zernotti, Mario E; Thibaudon, Michel; Tomazic, Peter Valentin; Annesi-Maesano, Isabella; Jutel, Marek; Quinones-Delgado, Pablo; Phillips, Jim; Todo-Bom, Ana; Onorato, Gabrielle L.; Benveniste, Samuel; Shan Zhong, Nan; Pereira, Marilyn Urrutia; Maspero, Jorge F; Prokopakis, Emmanuel P; Valiulis, Arunas; Suppli Ulrik, Charlotte; Muraro, Antonella; Palamarchuk, Julia; Mohammad, Yousser; Le Thi Tuyet, Lan; Neou, Angelo; Kuna, Piotr; Almeida, Rute; Namazova-Baranova, Leyla; Kritikos, Vicky; Chu, Derek K; Marshall, Gailen D; Kardas, Przemyslaw; Williams, Sian; Nekam, Kristof; Valovirta, Erkka; Dubakiene, Ruta; Tsiligianni, Ioanna; Montefort, Steve; Meltzer, Eli O; Murray, Ruth; Pugin, Benoit; Jassem, Ewa; Park, Hae-Sim; Picard, Robert; Brusselle, Guy; Arnavielhe, Sylvie; Patella, Vincenzo; Brozek, Jan; Carr, Warner; Bergmann, Karl-Christian; Melén, Erik; Brightling, Christopher E; H Chavannes, Niels; Moda, Giuliana; Pali-Schöll, Isabella; Valero, Antonio; Sofiev, Mikhail; Briggs, Andrew; Romano, Antonino; D'Amato, Gennaro; Shamji, Mohamed; Bialek, Slawomir; Caraballo, Luis; Rajabian-Söderlund, Rojin; Iaccarino, Guido; Ouedraogo, Solange; Buonaiuto, Roland; Silva, J da; Brussino, Luisa; Kouznetsov, Rostislav; Price, David; Paulino, Ema; Toumi, Mondher; Mercier, Jacques; Scadding, Glenis K; Monti, Ricardo; Solé, Dirceu; Boulet, Louis-Philippe; Gemicioglu, Bilun; Chkhartishvili, Ekaterine; Blain, Hubert; Fuentes Perez, José M; Humbert, Marc; Dantas, Carina; Yusuf, Osman; Fontaine, Jean-François; Viegi, Giovanni; Kaidashev, Igor; Cingi, Cemal; Boussery, Koen; Sanchez-Borges, Mario; Papadopoulos, Nikos G; Fokkens, Wytske J; Fink-Wagner, Antje; Wang, De Yun; Spranger, Otto; Cruz, Alvaro; Van Eerd, Michiel; Dauvilliers, Yves; Hajjam, Jawad; Valentin Rostan, Marylin; Puggioni, Francesca; Melo-Gomes, Elisabete; Ryan, Dermot; González Diaz, Sandra; Van Der Kleij, Rianne; Garcia-Aymerich, Judith; Mösges, Ralph; Gamkrelidze, Amiran; Stellato, Cristiana; Sarquis Serpa, Faradiba; Niedoszytko, Marek; Pfaar, Oliver; Pawankar, Ruby; Zar, Heather J; Loureiro, Claudia C; Fonseca, Joao A; El-Gamal, Yehia; Lopes-Pereira, Catarina; Masjedi, Mohamed R; Kalayci, Omer; Dray, Gerard; Carlsen, Karin C. Lodrup; Maurer, Marcus; Waserman, Susan; Bouchard, Jacques; Becker, Sven; Lipworth, Brian; Walker, Samantha; Mihaltan, Florin; Bédard, Annabelle; Keil, ThomasDigital anamorphosis is used to define a distorted image of health and care that may be viewed correctly using digital tools and strategies. MASK digital anamorphosis represents the process used by MASK to develop the digital transformation of health and care in rhinitis. It strengthens the ARIA change management strategy in the prevention and management of airway disease. The MASK strategy is based on validated digital tools. Using the MASK digital tool and the CARAT online enhanced clinical framework, solutions for practical steps of digital enhancement of care are proposed.