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Identidade e envelhecimento da pessoa com deficiência intelectual: contributos de um estudo qualitativo sobre cuidados formais
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| Documento em Acesso Embargado até dia 27-06-2027. Tente solicitar cópia ao autor carregando no ficheiro | 1.28 MB | Adobe PDF |
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Abstract(s)
O envelhecimento progressivo da pessoa com Deficiência Intelectual (DI) envolve questões complexas relacionadas com o sentido de identidade destas pessoas, e com a forma como os cuidados formais são prestados e experienciados. O presente estudo pretende explorar o envelhecimento e a identidade da pessoa com DI e os cuidados formais. Trata-se de um estudo qualitativo com dois grupos focais, no qual participaram 10 profissionais de diferentes áreas que trabalham diariamente com pessoas mais velhas com DI. Foi realizada análise temática dos dados recolhidos.
Os resultados indicam que s participantes consideraram que o envelhecimento das pessoas com DI como um processo mais precoce e heterogéneo do que na população sem DI. Identificaram como principais necessidades das pessoas com DI as emocionais, nomeadamente afeto e segurança, e médicas, como a necessidade de cuidados especializados contínuos. A questão da identidade foi pouco explorada pelos profissionais, que revelaram uma certa ausência na consciência da importância desta dimensão. Os profissionais consideram que a identidade das pessoas com DI é fortemente influenciada pelos outros e que existe uma perceção limitada do próprio envelhecimento e do sentido de identidade. Os resultados evidenciam, ainda, que práticas paternalistas e atitudes infantilizadoras são uma barreira ao desenvolvimento e manutenção do sentido de identidade e que as práticas centradas na pessoa são facilitadoras da manutenção da identidade. Contudo consideram difícil a implementação de práticas centradas na pessoa.
Este estudo alerta para a necessidade de se valorizar a identidade no processo de envelhecimento da pessoa com DI, apelando à implementação de práticas mais personalizadas. Incentivando a inclusão da identidade nos contextos formais, este estudo salienta a necessidade de melhorar os cuidados formais e a importância e relevância para a atualidade do estudo do processo de envelhecimento e sentido de identidade da pessoa com DI.
The progressive ageing of people with intellectual disabilities (ID) involves complex issues related to their sense of identity and the way formal care is provided and experienced. This study aims to explore the ageing and identity of people with ID and formal care. It is a qualitative study with two focus groups, in which 10 professionals from different areas who work daily with older people with ID took part. The data collected was thematically analysed. The results indicate that the participants considered the ageing of people with ID to be an earlier and more heterogeneous process than in the population without ID. They identified the main needs of people with ID as emotional, namely affection and safety, and medical, such as the need for ongoing specialised care. The issue of identity was little explored by the professionals, who revealed a certain lack of awareness of the importance of this dimension. The professionals consider that the identity of people with ID is strongly influenced by others and that there is a limited perception of ageing itself and the sense of identity. The results also show that paternalistic practices and infantilising attitudes are a barrier to the development and maintenance of a sense of identity and that person-centred practices facilitate the maintenance of identity. However, they found it difficult to implement person-centred practices. This study warns of the need to value identity in the ageing process of people with ID, calling for the implementation of more personalised practices. Encouraging the inclusion of identity in formal contexts, this study emphasises the need to improve formal care and the importance and relevance for today of studying the ageing process and sense of identity of people with ID.
The progressive ageing of people with intellectual disabilities (ID) involves complex issues related to their sense of identity and the way formal care is provided and experienced. This study aims to explore the ageing and identity of people with ID and formal care. It is a qualitative study with two focus groups, in which 10 professionals from different areas who work daily with older people with ID took part. The data collected was thematically analysed. The results indicate that the participants considered the ageing of people with ID to be an earlier and more heterogeneous process than in the population without ID. They identified the main needs of people with ID as emotional, namely affection and safety, and medical, such as the need for ongoing specialised care. The issue of identity was little explored by the professionals, who revealed a certain lack of awareness of the importance of this dimension. The professionals consider that the identity of people with ID is strongly influenced by others and that there is a limited perception of ageing itself and the sense of identity. The results also show that paternalistic practices and infantilising attitudes are a barrier to the development and maintenance of a sense of identity and that person-centred practices facilitate the maintenance of identity. However, they found it difficult to implement person-centred practices. This study warns of the need to value identity in the ageing process of people with ID, calling for the implementation of more personalised practices. Encouraging the inclusion of identity in formal contexts, this study emphasises the need to improve formal care and the importance and relevance for today of studying the ageing process and sense of identity of people with ID.
Description
Keywords
Envelhecimento Identidade Deficiência Intelectual Cuidados Formais Ageing Identity Intellectual disability Formal Care