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Abstract(s)
Introdução: Os Patient-reported outcome measures são ferramentas poderosas que
tentam assessar as necessidades dos pacientes de acordo com as suas perspectivas
únicas. Permitem à equipa de cuidados de saúde monitorizar a condição e
preocupações do paciente fora do ambiente clínico. Porém, a verdadeira inovação neste
campo é a digitalização, os electronic patient-reported outcome measures (ePROM’s).
Objetivo: O objectivo principal desta revisão é perceber se estas novas tecnologias
estão a ser usadas como uma nova ajuda às equipas de cuidados paliativos na sua luta
diária em oferecer cuidados de saúde e conforto aos seus pacientes.
Métodos: Foi realizada uma revisão sistemática de literatura em que os reports foram
recolhidos usando a PubMed e a Web of Science durante novembro de 2021. Durante
todo o processo foi utilizada a guideline Preferred Reporting Items for Systematic
Review and Meta-Analyses (PRISMA). A procura inicial resultou em 242 records, dos
quais 13 cumpriam os critérios de inclusão e exclusão. Destes foi extraída toda a
informação relevante no que toca ao uso dos ePROM’s.
Resultados: Os principais usos dos ePROM’s no final de vida (end-of-life) são a
avaliação da qualidade de vida (QOL assessment), a avaliação de carga sintomática e
avaliações diretas e a decisão de introdução de cuidados paliativos. Em 61.5% dos
casos, os ePROM’s tiveram um impacto positivo na qualidade de vida dos pacientes.
Em 46.15% dos casos, os ePROM’s levaram as equipas de PC.
Background: Patient-reported outcome measures (PROMS) are powerful tools that attempt to assess patients' needs from their unique perspectives. They allow the healthcare team to monitor the patient's condition and concerns outside the clinical setting. However, the real innovation in this field is their digitization: electronic patient-reported outcome measures (ePROMS). Objective: The main of this review is to assess whether these new technologies are being used as a novel aid to palliative care teams in their daily struggle to provide comfort to their patients. Methods: A systematic review was performed using PubMed and Web of Science. Through November 2021. Followed Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines at all stages. The search strategy yielded a total of 242 records, of which 13 met the predefined inclusion and exclusion criteria— extracted relevant information related to ePROM from each study. Results: The main uses of ePROMs in end-of-life scenarios are quality-of-life assessment, symptom burden and simple assessments, and the decision to introduce PC. In 61.5% of cases, ePROMs positively impacted patients' quality of life. In addition, in 46.15% of cases, the ePROMs led the PC teams to make an ethical decision; the same relative value as in the circumstances did not define the direction in ethical terms. Conclusion: Professionals and patients need to be reminded that these tools exist and can be applied in many situations. If used correctly, they can provide better QoL and QoC to patients in PC and better information provision to professionals.
Background: Patient-reported outcome measures (PROMS) are powerful tools that attempt to assess patients' needs from their unique perspectives. They allow the healthcare team to monitor the patient's condition and concerns outside the clinical setting. However, the real innovation in this field is their digitization: electronic patient-reported outcome measures (ePROMS). Objective: The main of this review is to assess whether these new technologies are being used as a novel aid to palliative care teams in their daily struggle to provide comfort to their patients. Methods: A systematic review was performed using PubMed and Web of Science. Through November 2021. Followed Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines at all stages. The search strategy yielded a total of 242 records, of which 13 met the predefined inclusion and exclusion criteria— extracted relevant information related to ePROM from each study. Results: The main uses of ePROMs in end-of-life scenarios are quality-of-life assessment, symptom burden and simple assessments, and the decision to introduce PC. In 61.5% of cases, ePROMs positively impacted patients' quality of life. In addition, in 46.15% of cases, the ePROMs led the PC teams to make an ethical decision; the same relative value as in the circumstances did not define the direction in ethical terms. Conclusion: Professionals and patients need to be reminded that these tools exist and can be applied in many situations. If used correctly, they can provide better QoL and QoC to patients in PC and better information provision to professionals.
Description
Keywords
Decision-Making End of Life Eproms Palliative Care Quality of Life Self-Management of Symptoms