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Authors
Abstract(s)
A epilepsia constitui uma doença crónica com grande influência na qualidade de
vida dos doentes, aspeto determinado em grande parte pela frequência de crises. No
entanto, uma boa autogestão poderá melhorar aspetos como adesão à terapêutica e
identificação de precipitantes de crises, o que poderá levar a uma melhoria no controlo
desta doença. Por outro lado, é sabido que a educação é um grande aliado no controlo de
doenças crónicas, levando a uma melhoria da autoconfiança e do autoconhecimento dos
doentes. Sendo assim, esta revisão tem como objetivo a análise de estudos que procurem
uma relação entre intervenções educacionais e controlo da doença, autogestão ou
qualidade de vida em pessoas com epilepsia, de modo a determinar qual a real
importância das mesmas.
Em primeiro lugar, foi efetuado o registo desta revisão na plataforma PROSPERO,
seguida de pesquisas nas bases de dados PubMed e Science Direct. Os artigos devolvidos
foram inseridos na Plataforma Rayyan e selecionados aqueles cuja intervenção tivesse
como objetivo a melhoria do conhecimento dos doentes acerca da epilepsia e sua gestão,
sendo que o resultado deveria estar relacionado com a melhoria da qualidade de vida,
controlo da doença ou autogestão.
Através desta pesquisa, foram conseguidos 993 estudos originais, dos quais 64
foram selecionados como possivelmente pertinentes. Destes, 20 corresponderam a todos
os critérios de inclusão, pelo que foram analisados na íntegra.
No final da análise, foi concluído que intervenções educacionais organizadas e
estruturadas podem ser uma mais valia no tratamento e acompanhamento de pessoas com
epilepsia, pelo que a sua implementação regular nos cuidados seria extremamente
benéfica.
Epilepsy is a chronical disease that has great influence in patients’ quality of life, which is greatly determined by seizure frequency. Nevertheless, a good self-management can improve aspects like adhesion to medication and identification of seizure precipitants, which can lead to a better disease control. On the other hand, it is known that education is a major ally in the control of chronic diseases, leading to an improvement in patients’ selfconfidence and self-knowledge. Therefore, this review has as its goal the analysis of studies that look for a relation between educational interventions and disease control, selfmanagement or quality of life in patients with epilepsy, so to determine their real importance. First, this review was registered in the PROSPERO platform, followed by research in the databases PubMed and Science Direct. The articles retrieved were inserted in the platform Rayyan and the ones whose intervention had as its goal the improvement of patients’ knowledge about epilepsy and its management were selected. The results studied should be related to the improvement of quality of life, disease control or selfmanagement. Through this research, 993 original studies were retrieved, of which 64 were selected as possibly pertinent. Of these, 20 respected all the inclusion criteria and were fully analysed. At the end of this analysis, it was concluded that organized and structured educational interventions may be of great value in the treatment and follow-up of patients with epilepsy. Therefore, its implementation on a regular basis would be extremely beneficial.
Epilepsy is a chronical disease that has great influence in patients’ quality of life, which is greatly determined by seizure frequency. Nevertheless, a good self-management can improve aspects like adhesion to medication and identification of seizure precipitants, which can lead to a better disease control. On the other hand, it is known that education is a major ally in the control of chronic diseases, leading to an improvement in patients’ selfconfidence and self-knowledge. Therefore, this review has as its goal the analysis of studies that look for a relation between educational interventions and disease control, selfmanagement or quality of life in patients with epilepsy, so to determine their real importance. First, this review was registered in the PROSPERO platform, followed by research in the databases PubMed and Science Direct. The articles retrieved were inserted in the platform Rayyan and the ones whose intervention had as its goal the improvement of patients’ knowledge about epilepsy and its management were selected. The results studied should be related to the improvement of quality of life, disease control or selfmanagement. Through this research, 993 original studies were retrieved, of which 64 were selected as possibly pertinent. Of these, 20 respected all the inclusion criteria and were fully analysed. At the end of this analysis, it was concluded that organized and structured educational interventions may be of great value in the treatment and follow-up of patients with epilepsy. Therefore, its implementation on a regular basis would be extremely beneficial.
Description
Keywords
Adultos Autogestão Educação Epilepsia Qualidade de Vida