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Publication
A importância do Engajamento Familiar na Unidade de Cuidados Intensivos
| Name: | Description: | Size: | Format: | |
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| 1.54 MB | Adobe PDF |
Advisor(s)
Abstract(s)
A presença da família nos cuidados do doente que se encontra em Unidades de Cuidados
Intensivos (UCI) é fundamental no apoio à pessoa que está internada por um período
prolongado. A participação da rede de suporte neste processo permite um apoio
emocional individualizado, facilita a comunicação entre a equipa médica e o doente e
auxilia na tomada de decisões complexas.
Além disso, o engajamento de familiares pode ajudá-los a gerir melhor o stress e as
emoções negativas que podem surgir durante o acompanhamento do tratamento na UCI.
Pretende-se, assim, verificar em que medida o engajamento da família é importante para
minimizar os resultados adversos para o doente após a saída dos cuidados intensivos e
encontrar medidas e intervenções que levem à melhoria da experiência de familiares na
UCI.
Através de uma revisão narrativa estruturada da literatura, foram analisadas as
principais práticas, recomendações e ferramentas utilizadas internacionalmente para
promover os Cuidados Centrados na Família (CCF). Verificou-se que o envolvimento
familiar melhora os resultados clínicos, reduz a ansiedade e o tempo de internamento, e
aumenta a satisfação global dos doentes e das suas redes de suporte. No entanto,
persistem obstáculos à sua implementação em Portugal, incluindo a inexistência de
guidelines nacionais, carência de recursos humanos e limitações estruturais.
Esta dissertação defende a necessidade de criação de guidelines adaptadas à realidade
nacional que promovam o envolvimento familiar como componente central da prática
clínica na UCI, incluindo formações específicas, reestruturação dos espaços e criação de
programas-piloto para testar a aplicabilidade das medidas. Por fim, é reforçado que o
futuro dos cuidados intensivos deve incluir a família como parte da equipa
multidisciplinar, promovendo ambientes de cuidado mais humanizados.
The presence of family members in the care of patients admitted to intensive care units (ICU) is essential in supporting individuals hospitalized for prolonged periods. Family participation provides individualized emotional support, facilitates communication between the medical team and the patient, and assists in complex decision-making processes. Moreover, family involvement helps caregivers manage stress and negative emotions that may arise during the ICU treatment process. This study aims to assess the extent to which family engagement is crucial in minimizing adverse outcomes for patients after ICU discharge and in enhancing the experience of families during hospitalization, focusing on understanding which interventions and measures can contribute to this. Through a structured narrative review, key practices, international recommendations, and tools used to promote Family-Centered Care were analysed. It was found that family involvement improves clinical outcomes, reduces anxiety and length of stay, and increases overall satisfaction for both patients and their support networks. However, challenges remain regarding its implementation in Portugal, such as the lack of national guidelines, human resource shortages, and structural limitations. This thesis defends the need to create guidelines adapted to the national context so that it can promote family engagement as a core component of ICU clinical practice, including specific training, environment restructuring, and pilot program development to validate the implementation of the interventions. Finally, it emphasizes that the future of intensive care should include the family as part of the multidisciplinary team, fostering more humanized care environments.
The presence of family members in the care of patients admitted to intensive care units (ICU) is essential in supporting individuals hospitalized for prolonged periods. Family participation provides individualized emotional support, facilitates communication between the medical team and the patient, and assists in complex decision-making processes. Moreover, family involvement helps caregivers manage stress and negative emotions that may arise during the ICU treatment process. This study aims to assess the extent to which family engagement is crucial in minimizing adverse outcomes for patients after ICU discharge and in enhancing the experience of families during hospitalization, focusing on understanding which interventions and measures can contribute to this. Through a structured narrative review, key practices, international recommendations, and tools used to promote Family-Centered Care were analysed. It was found that family involvement improves clinical outcomes, reduces anxiety and length of stay, and increases overall satisfaction for both patients and their support networks. However, challenges remain regarding its implementation in Portugal, such as the lack of national guidelines, human resource shortages, and structural limitations. This thesis defends the need to create guidelines adapted to the national context so that it can promote family engagement as a core component of ICU clinical practice, including specific training, environment restructuring, and pilot program development to validate the implementation of the interventions. Finally, it emphasizes that the future of intensive care should include the family as part of the multidisciplinary team, fostering more humanized care environments.
Description
Keywords
Cuidado de Saúde Centrados no
Doente Engajamento Familiar Humanização dos Cuidados Unidade Cuidados Intensivos