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Abstract(s)
Introdução: A melhoria dos cuidados de saúde resulta em uma maior longevidade dos doentes que sofrem de doenças crónicas incapacitantes o que, por sua vez, está fortemente associado a um aumento substancial das necessidades de apoio nos cuidados pessoais e de saúde. Esta realidade acarreta grandes consequências para o cuidador, que se define como toda a pessoa que assume, como função, a assistência de uma outra que não tem autonomia para a execução das Atividades de Vida Diárias. A atividade do cuidador informal implica uma significativa sobrecarga a vários níveis, havendo por essa razão necessidade de medidas de apoio que considerem a promoção e proteção da sua qualidade de vida.
Objetivo: Estudar a sobrecarga do cuidador informal de doentes dependentes, relacionando a mesma com a sua qualidade de vida. Métodos: Realizou-se um trabalho transversal e exploratório baseado numa amostra de conveniência e de tamanho epidemiológico estatisticamente significativo. Foi aplicado um questionário com um estudo sociodemográfico para caraterizar, nas várias dimensões, o cuidador informal e o contexto da prestação de cuidados. Foram ainda aplicados instrumentos para conhecimento do grau de sobrecarga e da qualidade de vida dos prestadores de cuidados a doentes dependentes: Carers Assessment of Difficulties Index (CADI) para identificar as principais dificuldades e o grau de sobrecarga dos cuidadores e World Health Organization Quality of Life – Bref (WHOQOL – bref), para avaliar a qualidade de vida.
Resultados: A interpretação dos resultados obtidos através da aplicação dos inquéritos permite concluir que existe uma correlação inversa estatisticamente significativa entre o CADI e o WHOQOL-bref, apresentando valores de ? de ?=-0,541 e p=0,001. Através desta correlação, podemos constatar que os cuidadores informais que estão expostos a uma elevada sobrecarga têm uma pior qualidade de vida, sendo o inverso igualmente verdade.
Conclusão: Conclui-se então que os cuidadores estão efetivamente expostos a um nível mais elevado de sobrecarga quando comparados ao resto da população. A exposição a estas dificuldades, no que à prestação de cuidados diz respeito, proporciona uma diminuição da qualidade de vida que se demonstra transversal a todas as dimensões da vida do cuidador. Através deste trabalho podemos concluir que a relação entre o nível de sobrecarga e o nível de qualidade de vida são inversamente proporcionais. Tendo como base este conhecimento é da responsabilidade de todos desenvolver redes de apoio para cuidar de quem cuida.
Introduction: The health care’s improvement results in a better life expectancy, but it also results on a substantial increase of the chronic diseases. Most of the times these diseases become incapacitating which increase the need of support and care. To give an answer to these needs, usually there is a caregiver, which most of the times it’s an informal one. This reality brings important consequences in the life of those caregivers. A caregiver it’s a person who helps another one who, because of sickness, frailty or disability, can’t manage everyday living without help or support. The role of a caregiver implies a significative burden and those who have this role experience profound and wide-ranging changes to their lives. That’s why there is a need to act and build a support network that helps the promotion of the quality of life of the caregivers. Aim: This study aims to study the burden of the informal caregivers and it’s correlation with their quality of life. The ultimate objective of this work is to alert the health and social care systems and so incite the responsible entities to develop a solid network that can answer the needs of these caregivers. With a better quality of life of the caregivers comes better cares and better quality of life of the dependent ones. Methods: This work consists on a transversal and exploratory study based on a convenience sample. The first part of the work aims to define sociodemographically the caregivers and to understand the context of the care giving. The purpose of the second part of this work is to scrutiny the burden of the informal caregivers and it’s correlation with their quality of life. The instruments for data collection were three questionnaires, one to make the sociodemographic study, Carers Assessment of Difficulties Index (CADI) to study the burden and World Health Organization Quality of Life – Bref (WHOQOL-Bref) to study the quality of life. Results: The interpretation of the data collected allows us to conclude that there is a statically significant inverse correlation between CADI and WHOQOL - bref, as we can see by the values of de ? de ?=-0,541 e p=0,001. Through this correlation we can say that as big is the burden as worse is the quality of life. Conclusion: With this study we can come to the conclusion that indeed the caregivers are exposed to an important level of burden and are also associated with a worse quality of life. This two parameters correlates with each other inversely, which means that with a big burden comes a bad quality of life. Having this information allows and incites us, because it is our responsibility as citizens and health professionals, to develop a consistent helping network to take care of the ones who give care.
Introduction: The health care’s improvement results in a better life expectancy, but it also results on a substantial increase of the chronic diseases. Most of the times these diseases become incapacitating which increase the need of support and care. To give an answer to these needs, usually there is a caregiver, which most of the times it’s an informal one. This reality brings important consequences in the life of those caregivers. A caregiver it’s a person who helps another one who, because of sickness, frailty or disability, can’t manage everyday living without help or support. The role of a caregiver implies a significative burden and those who have this role experience profound and wide-ranging changes to their lives. That’s why there is a need to act and build a support network that helps the promotion of the quality of life of the caregivers. Aim: This study aims to study the burden of the informal caregivers and it’s correlation with their quality of life. The ultimate objective of this work is to alert the health and social care systems and so incite the responsible entities to develop a solid network that can answer the needs of these caregivers. With a better quality of life of the caregivers comes better cares and better quality of life of the dependent ones. Methods: This work consists on a transversal and exploratory study based on a convenience sample. The first part of the work aims to define sociodemographically the caregivers and to understand the context of the care giving. The purpose of the second part of this work is to scrutiny the burden of the informal caregivers and it’s correlation with their quality of life. The instruments for data collection were three questionnaires, one to make the sociodemographic study, Carers Assessment of Difficulties Index (CADI) to study the burden and World Health Organization Quality of Life – Bref (WHOQOL-Bref) to study the quality of life. Results: The interpretation of the data collected allows us to conclude that there is a statically significant inverse correlation between CADI and WHOQOL - bref, as we can see by the values of de ? de ?=-0,541 e p=0,001. Through this correlation we can say that as big is the burden as worse is the quality of life. Conclusion: With this study we can come to the conclusion that indeed the caregivers are exposed to an important level of burden and are also associated with a worse quality of life. This two parameters correlates with each other inversely, which means that with a big burden comes a bad quality of life. Having this information allows and incites us, because it is our responsibility as citizens and health professionals, to develop a consistent helping network to take care of the ones who give care.
Description
Keywords
Cuidador Informal Cuidados Continuados Doentes Dependentes. Idoso