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Authors
Abstract(s)
A Escoliose Idiopática (EI) é o tipo mais frequente de escoliose, uma
deformação tridimensional complexa da coluna. Esta surge habitualmente na
adolescência, ainda que possa ocorrer na infância. Apesar dos aspetos físicos (p.e.,
aparência alterada, dor) e psicológicos (p.e., imagem corporal negativa, ansiedade)
desta condição e do seu tratamento estarem bem documentados, o estudo científico do
impacto psicológico que pode ter nos pais de crianças e adolescentes diagnosticados
com EI é relativamente recente.
O presente trabalho teve por objetivo explorar e analisar algumas
representações mentais e experiências dos pais de crianças e adolescentes
recentemente diagnosticadas com EI. Para tal, recorreu-se a métodos qualitativos de
recolha (viz. entrevista semiestruturada) e análise (viz. análise temática) de dados
fornecidos por mães (N = 6) de utentes do Serviço de Ortopedia Pediátrica do Hospital
Pediátrico de Coimbra, CHUC E.P.E.
Cinco temas principais emergiram: (1) tempo de espera pela consulta
especializada longo e de impacto psicológico condicional; (2) predomínio de estratégias
de coping focadas no problema durante o tempo de espera; (3) respostas (emocionais e
cognitivas) intensas, de tonalidade negativa, na revelação da gravidade do diagnóstico e
das principais opções de tratamento; (4) tensão no processo de tomada de decisão
sobre o tratamento; (5) estratégias de coping mistas (com aumento das focadas na
emoção) após a revelação.
Os resultados encontrados são reveladores de um período emocionalmente
desafiante ou difícil para os pais de crianças e adolescentes diagnosticados com EI e da
existência de estratégias de coping mais adequadas aos desafios ou dificuldades.
Possibilitaram, ainda, a sugestão de algumas medidas facilitadoras da adaptação do
utente e da sua família à doença e aos aspetos associados.
Idiopathic Scoliosis (IS) is the most common form of scoliosis, a complex threedimensional deformity of the spine. It typically presents during adolescence, but it can also start earlier in childhood or infancy. Although the physical (e.g., altered appearance, pain) and psychological (e.g., poor body image, anxiety) aspects of the condition and its treatment are well documented, the scientific study of the psychological impact of the diagnosis disclosure on parents of children and/or adolescents with EI is relatively recent. This study aimed at exploring and analysing mental representations and experiences of parents of children and/or adolescents recently diagnosed with EI. To this end, qualitative methods were used to collect (viz. semi-structured interview) and analyse (viz. thematic analysis) data provided by a few mothers (N=6) of patients followed in the Pediatric Orthopedics Service of the Hospital Pediátrico de Coimbra, CHUC E.P.E. Five main themes emerged: (1) waiting time for specialized medical appointment is too long and impacts differently; (2) problem-focused coping strategies are predominant during the waiting; (3) intense negative (emotional and cognitive) responses follow the diagnosis and the main treatment options disclosure; (4) treatment decision steams from a tense decision-making process; (5) mixed coping strategies (with a small predominance of those focused on emotion) are deployed after the disclosure. These results revealed an emotionally challenging or difficult period for parents of children and/or adolescents with EI and the existence of suitable coping strategies for the challenges and difficulties faced by them. Accordingly, a few measures to facilitate adaptation of the patient and her family to the disease and related aspects were suggested.
Idiopathic Scoliosis (IS) is the most common form of scoliosis, a complex threedimensional deformity of the spine. It typically presents during adolescence, but it can also start earlier in childhood or infancy. Although the physical (e.g., altered appearance, pain) and psychological (e.g., poor body image, anxiety) aspects of the condition and its treatment are well documented, the scientific study of the psychological impact of the diagnosis disclosure on parents of children and/or adolescents with EI is relatively recent. This study aimed at exploring and analysing mental representations and experiences of parents of children and/or adolescents recently diagnosed with EI. To this end, qualitative methods were used to collect (viz. semi-structured interview) and analyse (viz. thematic analysis) data provided by a few mothers (N=6) of patients followed in the Pediatric Orthopedics Service of the Hospital Pediátrico de Coimbra, CHUC E.P.E. Five main themes emerged: (1) waiting time for specialized medical appointment is too long and impacts differently; (2) problem-focused coping strategies are predominant during the waiting; (3) intense negative (emotional and cognitive) responses follow the diagnosis and the main treatment options disclosure; (4) treatment decision steams from a tense decision-making process; (5) mixed coping strategies (with a small predominance of those focused on emotion) are deployed after the disclosure. These results revealed an emotionally challenging or difficult period for parents of children and/or adolescents with EI and the existence of suitable coping strategies for the challenges and difficulties faced by them. Accordingly, a few measures to facilitate adaptation of the patient and her family to the disease and related aspects were suggested.
Description
Keywords
Representações Mentais Adolescentes Crianças Escoliose Idiopática Impacto Psicológico Parentalidade