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Abstract(s)
Introdução: A crescente incidência das demências e a sua sobrecarga para as famílias cria a necessidade de aumentar o conhecimento sobre o processo de cuidar de uma pessoa com demência na perspetiva do cuidador informal. Deste modo, surge a telemedicina que, através das modernas tecnologias de comunicação e informação poderá capacitar os cuidadores em termos de auxílio, formação e motivação. Dado que Portugal é um país com elevada prevalência de demência, com cerca de 19,9 casos por mil habitantes, e que não existem estudos que averiguem a possibilidade e necessidade de implementar ferramentas da telemedicina nos cuidadores de doentes com demências, surge o presente estudo.
Objetivos: A finalidade desta investigação centra-se na construção de um questionário e na composição de um vídeo informativo promotor de cuidados adaptados a síndrome demencial e, de forma consecutiva, verificar a validade e consistência destes. A descrição sociodemográfica dos cuidadores, a caracterização do uso e acesso às tecnologias de informação e particularmente a determinação do impacto da informação audiovisual na gestão dos cuidados prestados representam objetivos intrínsecos aos resultados obtidos com a aplicação do questionário.
Materiais e Métodos: A metodologia do estudo foi delineada para aplicar um inquérito a cuidadores informais de doentes com demência tendo por base a questão fundamental da dissertação. O questionário encontra-se dividido em duas partes, sendo que a segunda parte foi aplicada após a visualização de um vídeo, criado na plataforma go animate, alusivo à manifestação e evolução das demências e à adoção de conselhos práticos relativos à interação com pacientes que manifestem a síndrome demencial. Os cuidadores foram recrutados aquando da ida à consulta de neurologia do seu familiar, e após o preenchimento do consentimento informado integraram o estudo.
Resultados: O inquérito foi administrado maioritariamente de forma direta. Embora não se tenham assinalado interrogações no preenchimento do questionário, aferiram-se lapsos aquando da análise dos dados. Assim, a relevância estatística do estudo é limitada, sendo que o mais importante é a identificação de perguntas-problema que justifiquem uma alteração da escrita, formato e conteúdo. Todavia, assinalou-se que todos os inquiridos aprenderam mais sobre a doença e metade assegurou ter maior facilidade ou predisposição para aceitar a doença, após a visualização do vídeo.
Conclusão: Com efeito, a versão retificada do questionário contempla os objetivos da pesquisa e encontra-se válida para aplicação futura. E o vídeo é uma ferramenta útil para capacitar os cuidadores.
Introduction: The increasing incidence of dementia and its overload on families, creates the necessity of enriching information regarding the caring process of a person with dementia from the perspective of the informal caregiver. Telemedicine therefore arises, which through modern communication and information technologies, can capacitate the caregivers in terms of assistance, training and motivation. As Portugal has a high prevalence of dementia, with approximately 19,9 cases per thousand habitants, and as there are no studies that determine the possibility and necessity of providing telemedicine tools to caregivers of patients with dementia, the current study is therefore presented. Objectives: The purpose of this investigation is based on the elaboration of a questionnaire and the composition of an informative video promoting assistance adapted to the dementia syndrome, and verifying the validity and consistency of these in a consecutive manner. The socio-demographic description of caregivers, the characterization of the use and access to information technologies and particularly, the determination of the impact of the audiovisual information on the management of the care provided, represent intrinsic objectives to the results obtained with the application of the questionnaire. Material and Methods: The methodology of the study was outlined to apply one survey to informal caregivers of patients with dementia, for the purpose of the dissertation. The questionnaire is divided into two parts, in that the second part was applied after the visualization of a video, created on the platform “go animate”, allusive to the manifestation and evolution of dementia and the adoption of pratical advice relative to the interaction with patients that show evident signs of the dementia syndrome. The caregivers were recruited while attending the neurology consultation of their family member, and after the filling in of the consent form thereby integrating them in the study. Results: The survey by questionnaire was largely administered directly to the respondents. Even though no queries arose when the questionnaires were filled in, lapses were assessed when analyzing the data. The statistical relevance of the study is therefore limited, with the identification of the problem-questions becoming a priority which could justify an alteration of the writing, format and contents. On the otherhand, it should be pointed out that all of the respondents learnt more about the illness, and half of these assured having more ability or predisposition to accepting the illness after having seen the video. Conclusion: In effect, the rectified version of the questionnaire takes into account the objectives of the study, thus being valid for future application. The video is also a useful tool to capacitate the caregivers.
Introduction: The increasing incidence of dementia and its overload on families, creates the necessity of enriching information regarding the caring process of a person with dementia from the perspective of the informal caregiver. Telemedicine therefore arises, which through modern communication and information technologies, can capacitate the caregivers in terms of assistance, training and motivation. As Portugal has a high prevalence of dementia, with approximately 19,9 cases per thousand habitants, and as there are no studies that determine the possibility and necessity of providing telemedicine tools to caregivers of patients with dementia, the current study is therefore presented. Objectives: The purpose of this investigation is based on the elaboration of a questionnaire and the composition of an informative video promoting assistance adapted to the dementia syndrome, and verifying the validity and consistency of these in a consecutive manner. The socio-demographic description of caregivers, the characterization of the use and access to information technologies and particularly, the determination of the impact of the audiovisual information on the management of the care provided, represent intrinsic objectives to the results obtained with the application of the questionnaire. Material and Methods: The methodology of the study was outlined to apply one survey to informal caregivers of patients with dementia, for the purpose of the dissertation. The questionnaire is divided into two parts, in that the second part was applied after the visualization of a video, created on the platform “go animate”, allusive to the manifestation and evolution of dementia and the adoption of pratical advice relative to the interaction with patients that show evident signs of the dementia syndrome. The caregivers were recruited while attending the neurology consultation of their family member, and after the filling in of the consent form thereby integrating them in the study. Results: The survey by questionnaire was largely administered directly to the respondents. Even though no queries arose when the questionnaires were filled in, lapses were assessed when analyzing the data. The statistical relevance of the study is therefore limited, with the identification of the problem-questions becoming a priority which could justify an alteration of the writing, format and contents. On the otherhand, it should be pointed out that all of the respondents learnt more about the illness, and half of these assured having more ability or predisposition to accepting the illness after having seen the video. Conclusion: In effect, the rectified version of the questionnaire takes into account the objectives of the study, thus being valid for future application. The video is also a useful tool to capacitate the caregivers.
Description
Keywords
Cuidadores e Capacitação Demência Informação Audiovisual Telemedicina