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Abstract(s)
Os cuidados paliativos são cuidados holísticos e, como tal, o alívio dos sintomas, o apoio psicológico, espiritual e emocional e o apoio à família, quer durante a doença, quer durante o luto, são os seus componentes essenciais. Num documento publicado em 2006, relativamente aos critérios de qualidade para as unidades de cuidados paliativos, a Associação Portuguesa de Cuidados Paliativos (APCP) aconselhava a avaliação regular do grau de satisfação do doente e da família, em particular no que se refere às respostas às suas necessidades e à prestação de cuidados por parte da equipa.
Com o objetivo de aferir o grau de satisfação dos familiares de doentes internados no Serviço de Medicina Paliativa do Centro Hospitalar Cova da Beira, desenvolveu-se um estudo observacional, transversal e descritivo-correlacional, com recurso a entrevistas aos referidos familiares, durante os meses de outubro e novembro, do ano de 2014, tendo-se obtido uma amostra de 53 participantes.
O estudo revelou que, aquando do internamento no Serviço de Medicina Paliativa, 47,2% dos familiares não tinham qualquer conhecimento sobre o que eram os cuidados paliativos. Relativamente à satisfação com os cuidados prestados ao longo de todo o processo de doença, verificaram-se níveis de satisfação mais baixos relativamente à forma como o diagnóstico de uma doença ameaçadora da vida foi transmitido e ao encaminhamento para o Serviço de Medicina Paliativa (respetivamente, 24,5% e 32,1% dos familiares encontravam-se insatisfeitos ou muito insatisfeitos), em comparação com o acompanhamento prestado pela equipa de Cuidados Paliativos (96,3% dos familiares encontravam-se satisfeitos ou muito satisfeito). No entanto, foi identicada uma necessidade de apoio psicológico a 39,6% dos familiares, cuja escassez de recursos não permitiu suprir.
Importa incentivar e aprofundar o estudo destes indicadores, de modo a optimizar a prestação de cuidados de qualidade e que permitam acompanhar o doente e a sua família, quer durante a doença, quer durante o luto.
Palliative care are holistic and as such, the relief of symptoms, the psychological, spiritual and emotional support and the family’s support, both during illness and grief, are essential components. A paper, published in 2006 by the Associação Portuguesa de Cuidados Paliativos, about quality criteria for palliative care units, stated that patients and family’s satisfaction should be regularly evaluated, in particular as regards to the responses to their needs and care provision by the palliative care’s team. In order to assess the degree of satisfaction patients’ family members admitted at Centro Hospitalar Cova da Beira’s palliative care unit, an observational, cross-sectional descriptive -correlational study has been developed. Thus, during the months of October and November of 2014, patients’ family members admitted in this palliative care unit were interviewed, yielding a sample of 53 subjects. The study revealed that, at the hospitalization in Palliative Medicine Service, 47.2% of family members had no knowledge of what palliative care was. With regard to satisfaction with the care provided throughout the disease process, there were lower levels of satisfaction with how the diagnosis of a life-threatening disease was transmitted and routing for Palliative Medicine Service (respectively, 24,5% and 32,1% of families found themselves dissatisfied or very dissatisfied) compared with the care provided by the team of Palliative Care (96.3% of families found themselves satisfied or very satisfied). However, it was identified a need for psychological support for 39.6% of families, but the lack of resources didn’t allow its suppression. Further study of these indicators should be encouraged, in order to optimize the provision of quality care and to support the patient and his family, both during the disease, and during bereavement.
Palliative care are holistic and as such, the relief of symptoms, the psychological, spiritual and emotional support and the family’s support, both during illness and grief, are essential components. A paper, published in 2006 by the Associação Portuguesa de Cuidados Paliativos, about quality criteria for palliative care units, stated that patients and family’s satisfaction should be regularly evaluated, in particular as regards to the responses to their needs and care provision by the palliative care’s team. In order to assess the degree of satisfaction patients’ family members admitted at Centro Hospitalar Cova da Beira’s palliative care unit, an observational, cross-sectional descriptive -correlational study has been developed. Thus, during the months of October and November of 2014, patients’ family members admitted in this palliative care unit were interviewed, yielding a sample of 53 subjects. The study revealed that, at the hospitalization in Palliative Medicine Service, 47.2% of family members had no knowledge of what palliative care was. With regard to satisfaction with the care provided throughout the disease process, there were lower levels of satisfaction with how the diagnosis of a life-threatening disease was transmitted and routing for Palliative Medicine Service (respectively, 24,5% and 32,1% of families found themselves dissatisfied or very dissatisfied) compared with the care provided by the team of Palliative Care (96.3% of families found themselves satisfied or very satisfied). However, it was identified a need for psychological support for 39.6% of families, but the lack of resources didn’t allow its suppression. Further study of these indicators should be encouraged, in order to optimize the provision of quality care and to support the patient and his family, both during the disease, and during bereavement.
Description
Keywords
Apoio Psicológico Cuidados Paliativos Família Referenciação Satisfação