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Abstract(s)
A epilepsia é uma das doenças mais comuns e graves do cérebro, pode ocorrer em todas as idades
e manifestar-se de variadas formas e com causas distintas (Duncan et al. 2006). Estima-se que em
Portugal haja cerca de 50 mil habitantes com epilepsia (Lopes Lima 1998), sendo que grande
parte dos doentes se encontram em idade ativa, é evidente a necessidade do controlo das crises.
Vários estudos demonstraram a relação positiva entre a frequência das crises, a qualidade de vida
dos doentes com epilepsia, e os custos envolvidos (Guerrini et al., 2001; Hout et al., 1997). A
identificação de modelos de gestão que maximizem a qualidade de vida dos doentes vão por isso
traduzir-se na redução dos custos diretos e indiretos associados à epilepsia (Hovinga et al., 2008;
Schachter, 2000). O objetivo deste estudo foi fazer a tradução, adaptação cultural e validação do
questionário Quality of Life in Epilepsy (QOLIE-89) para a população Portuguesa.
A metodologia utilizada para a tradução e adaptação cultural foi a recomendada por Beaton e
colaboradores (2000) tendo sido feitas duas traduções tendo, depois de analisadas, dado origem a
uma versão síntese. Posteriormente, foram feitas duas retrotraduções e todas as versões foram
analisadas por uma comissão de especialistas. As alterações propostas foram ajustadas e deram
origem à versão pré-teste do questionário que foi aplicada 30 doentes. Todos os relatórios foram
enviados para apreciação dos autores. A fidelidade da versão adaptada foi avaliada através da
consistência interna e a validade de constructo através da análise fatorial.
A viabilização deste questionário permitirá perceber melhor as dificuldades e necessidades dos
doentes com epilepsia, assim como dos fatores relacionados com a doença que mais impactam no
seu quotidiano (Devinsky et al., 1995). Desta forma, será possível articular os serviços de saúde e
seus profissionais para uma gestão mais adequada dos recursos disponíveis potenciando assim
ganhos em saúde e possibilitando a redução de custos (Taylor, Sander, Taylor, & Baker, 2011).
Epilepsy is one of the most common and serious diseases of the brain can occur in all ages and is manifested in various forms and for different causes (Duncan et al., 2006). It is estimated that in Portugal there are about 50,000 people with epilepsy (Lopes Lima 1998), and most of the patients are of working age, it is clear the need for seizure control. Several studies have shown a positive relationship between the frequency of seizures, the quality of life of patients with epilepsy, and the costs involved (Guerrini et al., 2001; Hout et al., 1997). The identification of management models that maximize the quality of life of patients will therefore be reflected in the reduction of direct and indirect costs associated with epilepsy (Hovinga et al, 2008; Schachter, 2000). The aim of this study was to make the translation, cultural adaptation and validation questionnaire Quality of Life in Epilepsy (QOLIE-89) for the Portuguese population. The methodology used for the translation and cultural adaptation was recommended by Beaton et al (2000) have been made with two translations, after consideration, given rise to a summary version. Later, they were asked two back-translations and all versions were analyzed by a committee of experts. The proposed amendments were adjusted and led to the pre-test version of the questionnaire was applied to 30 patients. All reports have been submitted for consideration by the authors. The fidelity of the adapted version was assessed by internal consistency and construct validity by factor analysis. The feasibility of this questionnaire will better understand the difficulties and needs of patients with epilepsy, as well as factors related to the disease that most impact in their daily lives (Devinsky et al., 1995). In this way, you can articulate the health services and their professionals to better management of available resources thus enhancing health gains and enabling cost reduction (Taylor Sander, Taylor, & Baker, 2011).
Epilepsy is one of the most common and serious diseases of the brain can occur in all ages and is manifested in various forms and for different causes (Duncan et al., 2006). It is estimated that in Portugal there are about 50,000 people with epilepsy (Lopes Lima 1998), and most of the patients are of working age, it is clear the need for seizure control. Several studies have shown a positive relationship between the frequency of seizures, the quality of life of patients with epilepsy, and the costs involved (Guerrini et al., 2001; Hout et al., 1997). The identification of management models that maximize the quality of life of patients will therefore be reflected in the reduction of direct and indirect costs associated with epilepsy (Hovinga et al, 2008; Schachter, 2000). The aim of this study was to make the translation, cultural adaptation and validation questionnaire Quality of Life in Epilepsy (QOLIE-89) for the Portuguese population. The methodology used for the translation and cultural adaptation was recommended by Beaton et al (2000) have been made with two translations, after consideration, given rise to a summary version. Later, they were asked two back-translations and all versions were analyzed by a committee of experts. The proposed amendments were adjusted and led to the pre-test version of the questionnaire was applied to 30 patients. All reports have been submitted for consideration by the authors. The fidelity of the adapted version was assessed by internal consistency and construct validity by factor analysis. The feasibility of this questionnaire will better understand the difficulties and needs of patients with epilepsy, as well as factors related to the disease that most impact in their daily lives (Devinsky et al., 1995). In this way, you can articulate the health services and their professionals to better management of available resources thus enhancing health gains and enabling cost reduction (Taylor Sander, Taylor, & Baker, 2011).
Description
Keywords
Epilepsia Ganhos Em Saúde Qualidade de Vida